My name is Edwina Wrenn and I was born 3lbs 3oz with a rare birth defect called Exomphalos that is also known as Omphalocele. I defied the odds of survival and have now gone on to have two children of my own. I also set up and run the only Irish support group for parents whose babies are born with the condition. can you please share this online so I can reach more families and survivors.
This is my Youtube video so you can hear my story. I have it in written format as well.
https://youtu.be/-Ph0mBFm6qQ
